- Phone: (216) 834-2410
- Email: admin@fmdsa.org
The Non-Atherosclerotic Coronary Artery Disease (NACAD) Registry is an ongoing patient registry approved by the UBC research ethics board for patients with non-atherosclerotic forms of coronary artery disease. Patients with previously diagnosed SCAD are eligible for this study.
Objectives:
(1) To evaluate the long-term clinical outcome (recurrent cardiac events, hospitalization, revascularization, and symptoms) of patients with NACAD.
(2) To evaluate the long-term outcome of the dominant subsets of patients with NACAD, in particular, SCAD and coronary FMD.
Study Population:
Patients who were previously identified to have NACAD on coronary angiography. Any NACAD patients who presented with ACS or stable outpatients are eligible. We anticipate that the majority of patients would be women.
For inclusion in the NACAD Registry please contact research coordinator Dr. Andrew Starovoytov (a.starovoytov@ubc.ca) or principal investigator Dr. Jacqueline Saw (jsaw@mail.ubc.ca).
Dr Saw is also the principal investigator for the Canadian SCAD Study for more information on her research please visit http://scad.ubc.ca
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Beadie was created by FMD patients in the Netherlands. She represents a beaded artery, which is characteristic of the most common form of FMD. You will find Beadie throughout our site, sharing facts about FMD with our site visitors of all ages!
Since ancient times and across many cultures, the tree has long been a symbol of many things, including wisdom, protection, strength, inter-connectivity, and life itself. We’ve chosen the tree to represent the Fibromuscular Dysplasia Society of America for these reasons, and because the tree’s branches and roots signify the arteries affected by this disease. The tree’s branches, reaching upward and outward, provide protection and shelter, and represent our mission to help those who’ve been diagnosed with FMD. Trees, strengthened by their continuously spreading roots, symbolize how as we grow together we are stronger and more resilient. As with its growth from a delicate sapling to a giant robust tree, and as its branches and roots grow and spread, the tree symbol represents how we’ve evolved and continue to promote research, education and patient support throughout the years. Together we can achieve much, as we strive to reach for the sky.
“The creation of a thousand forests is in one acorn.”
-Ralph Waldo Emerson
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Dear (name) I am writing to request your assistance in designating May as Fibromuscular Dysplasia Awareness Month
Fibromuscular dysplasia (FMD) is a disease that causes abnormal cell growth of the arterial wall. FMD can lead to areas of narrowing (stenosis), beading, aneurysms, and dissections (tears) of the arterial wall. Until recently, there has been very little progress made in understanding the disease since it was first diagnosed in 1938. There is no known cause or cure for the disease and there are no set protocols to treat the disease. Many researchers now believe FMD is an under-diagnosed disease. Some of the data suggest that 4-5% of the population may be affected by the disease.
Patients and their families must bear a large share of the burden for things such as educating others, including their own physicians, and raising funds for awareness and research. Patients often experience problems such as a sense of isolation, difficulty in obtaining accurate and timely diagnosis, and optimal treatment options.
I strongly believe the Resolution of Fibromuscular Dysplasia Month will increase awareness, improve the delay in diagnosis, lead to better treatment and improve the lives of patients and families affected by the disease.
I thank-you in advance for your time and consideration.
Sincerely,
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