Close
  • Email: admin@fmdsa.org
Become A Member
logo
  • Home
  • About Us
    • About FMDSA
    • Board of Directors
    • Medical Advisory Board
    • Annual Reports & By-Laws
    • Milestones & Honorees
      • Milestones
      • Awards
        • 2008
        • 2009
        • 2010
        • 2012
        • 2014
        • 2017
        • 2019
        • Honorary Past Members
  • FMD Info
    • What is FMD?
      • What is Fibromuscular Dysplasia (FMD)?
      • What Causes FMD?
      • What are the signs and/or symptoms of FMD?
      • Coronary Artery FMD and Spontaneous Coronary Artery Dissection (SCAD)
      • Who has FMD?
      • How common is FMD?
      • How can FMD be diagnosed?
      • What kind of treatment is there for FMD?
    • Videos
  • Patient Support
    • Patient Resources
      • Online Medical Information – Research
      • Health Organizations
      • Government Resources
      • Health Insurance
      • Miscellaneous Links
      • Orphanet
    • Patient Toolbox
    • Stories
      • Adult FMD
      • Adolescent FMD
      • Pediatric FMD
      • SCAD FMD
    • FMD Clinics
    • Support Groups
  • For Physicians
    • Physician Resources
    • Physician Toolbox
  • Get Involved
    • Become a Member
      • Become a Member of FMDSA
      • Corporate Sponsorship
      • FMDSA Circle of Friends
      • FMDSA’s Amazon Wish List
    • Membership Form
    • Volunteer
    • Donate
      • Donate
      • Appeal Letter
      • Donation in Memory / On Behalf
      • Donate Airline Miles
      • Donate a Car
      • Non-Cash Gifts
      • Planned Giving
    • Donation Form
    • Fundraising
  • News & Events
    • News & Events
    • Gallery
  • Research Network
    • The North American Registry for FMD
    • Registry Publications
      • Manuscripts
      • Abstracts
      • Posters
    • Other FMD Research Findings
    • Other FMD Related Research Studies
  • Donate Now
Donate Now
Donate Now
  • Home
  • About Us
    • About FMDSA
    • Board of Directors
    • Medical Advisory Board
    • Annual Reports & By-Laws
    • Milestones & Honorees
      • Milestones
      • Awards
        • 2008
        • 2009
        • 2010
        • 2012
        • 2014
        • 2017
        • 2019
        • Honorary Past Members
  • FMD Info
    • What is FMD?
      • What is Fibromuscular Dysplasia (FMD)?
      • What Causes FMD?
      • What are the signs and/or symptoms of FMD?
      • Coronary Artery FMD and Spontaneous Coronary Artery Dissection (SCAD)
      • Who has FMD?
      • How common is FMD?
      • How can FMD be diagnosed?
      • What kind of treatment is there for FMD?
    • Videos
  • Patient Support
    • Patient Resources
      • Online Medical Information - Research
      • Health Organizations
      • Government Resources
      • Health Insurance
      • Miscellaneous Links
      • Orphanet
    • Patient Toolbox
    • Stories
      • Adult FMD
      • Adolescent FMD
      • Pediatric FMD
      • SCAD FMD
    • FMD Clinics
    • Support Groups
  • For Physicians
    • Physician Resources
    • Physician Toolbox
  • Get Involved
    • Become a Member
      • Become a Member of FMDSA
      • Corporate Sponsorship
      • FMDSA Circle of Friends
      • FMDSA’s Amazon Wish List
    • Membership Form
    • Volunteer
    • Donate
      • Donate
      • Appeal Letter
      • Donation in Memory / On Behalf
      • Donate Airline Miles
      • Donate a Car
      • Non-Cash Gifts
      • Planned Giving
    • Donation Form
    • Fundraising
  • News & Events
    • News & Events
    • Gallery
  • Research Network
    • The North American Registry for FMD
    • Registry Publications
      • Manuscripts
      • Abstracts
      • Posters
    • Other FMD Research Findings
    • Other FMD Related Research Studies
  • Donate Now

The Fibromuscular Dysplasia Society of America is a public health charity working towards
better diagnosis and treatment of Fibromuscular Dysplasia (FMD).

Contact Us
Stay Connected:

  • 26777 Lorain Road, Suite 311, North Olmsted, Ohio 44070
  • admin@fmdsa.org
  • Privacy Policy |
  • Terms and Conditions |
  • Disclaimer

Copyright 2021 © FMDSA • All Rights Reserved.

  • Privacy Policy |
  • Terms and Conditions |
  • Disclaimer
Cleantalk Pixel
We use our own and third-party cookies to personalize content, improve your browsing experience, and to analyze web traffic. Read more about our Privacy Policy
Accept All
Manage consent

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.
Necessary
Always Enabled
Necessary cookies are absolutely essential for the website to function properly. These cookies ensure basic functionalities and security features of the website, anonymously.
CookieDurationDescription
cookielawinfo-checkbox-analytics11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Analytics".
cookielawinfo-checkbox-functional11 monthsThe cookie is set by GDPR cookie consent to record the user consent for the cookies in the category "Functional".
cookielawinfo-checkbox-necessary11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookies is used to store the user consent for the cookies in the category "Necessary".
cookielawinfo-checkbox-others11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Other.
cookielawinfo-checkbox-performance11 monthsThis cookie is set by GDPR Cookie Consent plugin. The cookie is used to store the user consent for the cookies in the category "Performance".
viewed_cookie_policy11 monthsThe cookie is set by the GDPR Cookie Consent plugin and is used to store whether or not user has consented to the use of cookies. It does not store any personal data.
Functional
Functional cookies help to perform certain functionalities like sharing the content of the website on social media platforms, collect feedbacks, and other third-party features.
Performance
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Analytics
Analytical cookies are used to understand how visitors interact with the website. These cookies help provide information on metrics the number of visitors, bounce rate, traffic source, etc.
Advertisement
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
Others
Other uncategorized cookies are those that are being analyzed and have not been classified into a category as yet.
SAVE & ACCEPT
Regional Network Volunteers/ Groups
  1. Connecticut
    Lisa Shelanskas at emsiservices@aol.com
  2. Florida
    Lisa Foster at lisa.foster@fmdsa.org
  3. Kansas
    Brenda Brodrick at balletplie@aol.com
  4. Kentucky
    Rosie Miklavcic at rosiemik@aol.com
  5. Illinois
    Karen Hartman at khartman922@gmail.com
  6. Iowa
    Ojas Pradhan at ojaspradhan@hotmail.com
    Brenda Spencer at theinkgraphics@yahoo.com
  7. Maryland
    Claudia Palau Kime at claudia.kime@fmdsa.org
    SCAD and FMD and Karen Good at kptocs@yahoo.com
  8. Michigan
    Pam Mace at pam.mace@fmdsa.org SCAD and FMD contact
  9. Nebraska
    Brenda Spencer at theinkgraphics@yahoo.com
  10. Nevada
    Barbara McFee at jadebarbara@aol.com
  11. New Jersey
    Cheryl Bailey at cheryl.bailey@fmdsa.org
  12. New York
    Kelly Seifried at pedsobrn@gmail.com or Lora Santanastaso at donateFMD@aol.com
  13. North Carolina
    Carol Rogers at carol-rogers@ec.rr.com or Allison Gaines at allisonag68@gmail.com
  14. Ohio
    Kelly Anderson at kelandy2011@gmail.com and Christi Nelson christi.nelson@fmdsa.org SCAD and FMD contact
  15. Oklahoma
    Rhonda Vesely at Rhonda.Vesely@yahoo.com SCAD and FMD
  16. Oregon
    Gina Summers at ginasummers@mac.com
  17. Pennsylvania
    Jill Kelly McComsey at jkellyjd@yahoo.com SCAD and FMD contact
  18. Rhode Island
    Emily Mayer at derica711@yahoo.com
  19. South Carolina
    Kimberly Waters at mzwaters@gmail.com
  20. Tennessee
    Amy Jaramil at amyjaramil@gmail.com
  21. Virginia
    Maureen Womack at maureen.womack@fmdsa.org
  22. Washington
    Gayle McElroy at mcelroygayle55@gmail.com
    Susie Goldsmith at susie@goldsmithconsulting.org
    Rob Kneisler robkneisler@gmail.com
  23. Wisconsin
    Dawn Marisch at thesunbeam@wi.rr.com SCAD and FMD
Introducing our FMDSA site mascot Beadie!

Beadie was created by FMD patients in the Netherlands. She represents a beaded artery, which is characteristic of the most common form of FMD. You will find Beadie throughout our site, sharing facts about FMD with our site visitors of all ages!

Tell a Friend

The Tree as Our Symbol

Since ancient times and across many cultures, the tree has long been a symbol of many things, including wisdom, protection, strength, inter-connectivity, and life itself. We’ve chosen the tree to represent the Fibromuscular Dysplasia Society of America for these reasons, and because the tree’s branches and roots signify the arteries affected by this disease. The tree’s branches, reaching upward and outward, provide protection and shelter, and represent our mission to help those who’ve been diagnosed with FMD. Trees, strengthened by their continuously spreading roots, symbolize how as we grow together we are stronger and more resilient. As with its growth from a delicate sapling to a giant robust tree, and as its branches and roots grow and spread, the tree symbol represents how we’ve evolved and continue to promote research, education and patient support throughout the years. Together we can achieve much, as we strive to reach for the sky.

 

“The creation of a thousand forests is in one acorn.”
-Ralph Waldo Emerson

Sample letter

SENDER’S NAME

Street Address

City, State Postal Code

Phone

Email address

DATE

Office of:

Street Address:

City, State Postal Code:

 

Dear (name) I am writing to request your assistance in designating May as Fibromuscular Dysplasia Awareness Month

 

Fibromuscular dysplasia (FMD) is a disease that causes abnormal cell growth of the arterial wall. FMD can lead to areas of narrowing (stenosis), beading, aneurysms, and dissections (tears) of the arterial wall. Until recently, there has been very little progress made in understanding the disease since it was first diagnosed in 1938. There is no known cause or cure for the disease and there are no set protocols to treat the disease. Many researchers now believe FMD is an under-diagnosed disease. Some of the data suggest that 4-5% of the population may be affected by the disease.

 

Patients and their families must bear a large share of the burden for things such as educating others, including their own physicians, and raising funds for awareness and research. Patients often experience problems such as a sense of isolation, difficulty in obtaining accurate and timely diagnosis, and optimal treatment options.

 

I strongly believe the Resolution of Fibromuscular Dysplasia Month will increase awareness, improve the delay in diagnosis, lead to better treatment and improve the lives of patients and families affected by the disease.

 

I thank-you in advance for your time and consideration.

 

Sincerely,

Signature