Welcome to FMDSA                   

The Fibromuscular Dysplasia Society of America is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community.  Learn more about our organization. 

SAVE THE DATE: May 20, 2017

FOR THE 10TH ANNUAL FMDSA MEETING being held at the Wyndham Hotel in Cleveland, Ohio

For more information and registration, click here.

Please mention FMDSA when contacting the hotel to receieve the room discount.

 

Wyndham Hotel

1260 Euclid Ave

216-615-7500

Cleveland, OH 44115

 

         

 

Speakers include:

Dr Jeffrey - Olin Mt Sinai, New York, NY

Dr Heather Gornik- Cleveland Clinic, Cleveland, Ohio

Dr Jason Kovacis - Mt Sinai, New York, NY

Dr Esther Kim - Vanderbilt University Medical Center, Nashville, TN

Dr Nabilia Bouatia- Naji - Paris, France

Dr Alexandre Persu - Brussels, Belgium

Emma Greewood - Whooshers.com

Topics  include:

"Understanding Fibromuscular Dysplasia"

"Update on the United States Registry for Fibromuscular Dysplasia"

"Genetics and Fibromuscular Dysplasia"

"Aneurysms and Dissections in FMD"

"Spontaneous Coronary Artery Dissection and FMD"

"Update from the International Research Network Group"

"Treating Fibromuscular Dysplasia"

Topics are subject to change.                                                   

 We thank our 2017 Meeting Sponsors for their continued support.        

      

 

 

 

                       

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FMDSA is an Official Charity of the Cleveland Marathon.  Please consider running as part of our team in 2017.

 

We are putting together teams of runners and walkers to participate in the marathon, half marathon, 10K, 5K and kids run. FMDSA is also looking for 25 volunteers to work at a water station on Sunday, May 21st. All 25 people will stay together and we can be as creative as we would like with our water station. For more information please contact volunteer Karen Prcela at karen.prcela@fmdsa.org,  

For specific information on the race, click hereFor runners the group code for all races is: RUN4FMDSAThis code should be entered into the COUPON CODE section of the application form. We would like to encourage our runners to support or create a  fundraising page; it's fast, easy and secure. To create your page, clickhere. 

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Congratulations to doctors Heather Gornik and Jeffrey Olin who Co-Chaired the First International Fibromuscular Dysplasia Network Symposium in Cleveland Ohio. 

 

 

 

 

 

 

 

 

 

 

This meeting gathered key researchers and clinical thought leaders in the field of FMD for a state-of-the-art review of the existing knowledge base and current research activities related to FMD in the United States and abroad. A large proportion of the meeting was  focused on the creation of an FMD research network, comprised of four focused working groups on various aspects of FMD research (epidemiology, genetics, research registries, and imaging and clinical therapeutics).

To view all abstracts presented and learn more about the Symposium and working groups, please follow this link.



Fibromuscular Dysplasia: State of the Science and Critical Unanswered Questions: A Scientific Statement from the American Heart Association.

The authors did a great job and covered all areas of FMD including history of the disease, diagnosis, imaging, treatment and research. We would like to thank everyone involved, especially Dr Jeffrey Olin and Dr Heather Gornik for their dedication to FMD patients and FMDSA.  The paper is free and can be found on Circulation, Journal of the American Heart Association.

 

           


 

       

 



Supporting the Rare Disease Community

FMDSA is a member organization of NORD. The National Organization for Rare Diseases and also a partner of the RARE Project, both organizations represent rare diseases from all over the world.

 

With Support From...


FMDSA's Amazon Wish List

The Amazon Wish List allows organizations such as ours to defray the cost of many items we would otherwise need to purchase, and allows benefactors the opportunity to make a donation to FMDSA in the form of an item that we need in our office or for a conference.  Click here to register for amazon smile and to search through our "wish list" and find an item that you would like to donate to FMDSA. It is that simple; just add to your shopping cart, pay, and Amazon ship your donated item to FMDSA.  Thank you in advance for helping support FMDSA via our Amazon.com wish list. Please note that it has come to our attention that Amazon is not sending a gift notice with your orders so for now unless you contact us directly we have no way of knowing who sent the items. We are working with Amazon to resolve this issue.  Thank you for your donations!

 

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