Welcome to FMDSA

The Fibromuscular Dysplasia Society of America is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community.  Learn more about our organization.

Latest News

For the most recent data coming from the FMDSA funded FMD Patient Registry presented at the 2012 ACC meeting in Chicago, please follow the link to the JACC web site by clicking here

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"May 18-19, 2012"...the FIFTH FMDSA ANNUAL CONFERENCE will be held at the Wyndham Hotel in Downtown Cleveland.  We would like to thank Cardiomems, the Cleveland Clinic Foundation, Greenville Hospital, the University of Virginia , The University of Michigan and Minneapolis Heart Institute/Abbott Northwestern Hospital for sponsoring our 2012 meeting.  To hear Dr. Gornik discuss last years meeting, click here

***For the meeting agenda, click here ( agenda subject to change)

Friday May 18th there will be a reception and registration starting at 5:30 pm, and the conference starts early Saturday morning.

Confirmed speakers include: Dr. Santhi Ganesh, University of Michigan - Genetics; Dr. Bruce Gray, Greenville Hospital SC - Intervention and FMD; Dr. Jeffrey Olin, Mt Sinai New York - New Data from the FMD Patient Registry; Dr. Heather Gornik, Cleveland Clinic Foundation - Quality of life, Genetics and Physicial Exam; Dr. Kevin Meyers, Childrens Hospital of Philadelphia - Genetic causes of Renovascular Hypertension in Children; Dr Esther Kim, Cleveland Clinic Foundation - Fibromuscular Dysplasia 101; Dr Mark Stillman, Cleveland Clinic- Headache and treatment options; Dr James Stanley, University of Michigan - Operative treatment of childhood renal FMD; Dr. Chris Buller, St. Michael's Hospital, University of Toronto - Coronary FMD.

To register for the meeting, please click here
To download and mail in registration click here

To make hotel reservations please contact the hotel directly at 216-615-7500, mention Fibromuscular Dysplasia Society to receive the discounted rate of $95.00/nt plus tax. We suggest you book your room early as the hotel sold out for the last meeting. As we have more details, they will be posted on facebook and the FMDSA web site.

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Dr Jeffrey Olin spoke at the ISET meeting in Miami on January 17th and the media was there paying attention,  for highlights of Dr Olin's talk please click here.  Thank you to all who donate, the registry and this data would not be possible without you.

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Hip Chix Fundraiser

Do you love jewelry?  We do too!  Especially when it's for a good cause!

The Fibromuscular Dysplasia Society of America, Inc. is raising money to help fund the FMD Patient Registry Program across the United States and we need your help!  

We're doing an online jewelry fundraiser with Hip Chix Fundraisers. This is a fantastic simple way for everyone to get involved to help this important initiative because with each purchase FMDSA will receive 50%! 

Just click here, make a purchase and 50% of each sale will go to help us fund the FMD Patient Registry.

The FMD Patient Registry Program is critical for the gathering of information and data so that we can better understand the natural course of the disease and to determine effective treatment protocols to relieve symptoms and reduce adverse outcomes. 

We appreciate any support you can give.  Buy something fun for yourself or get Mom's Mother's Day shopping wrapped up early, because with 50% going to fund this much needed program, your purchase will be helping a great cause.

It's easy, just click here, make a purchase and be the difference!

We can't thank you enough for your consideration and support.

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VASCULAR DISEASE FOUNDATION magazine, Winter 2012 Edition features Dr. Heather Gornik and our own Cheryl Bailey:  Click here to read the article.

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FMD CLEVELAND CLINIC WEB CHAT

Click Here to view the transcripts from the December 14TH FMD Cleveland Clinic web chat with Dr Heather Gornik and FMDSA Executive Director Pamela Mace.

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 FMDSA's Amazon Wish List: The Amazon Wish List allows organizations such as ours to defray the cost of many items we would otherwise need to purchase, and allows benefactors the opportunity to make a donation to FMDSA in the form of an item that we need in our office or for a conference. Simply go to http://www.amazon.com/gp/registry/registry.html?ie=UTF8&type=wishlist&id=1TGFVOJWASNCR, and search through our "wish list" and find an item that you would like to donate to FMDSA, it is that simple, add to your shopping cart, pay and Amazon ships it to FMDSA.  Thank you in advance for helping support FMDSA via our Amazon.com wish list.

 

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