Welcome to FMDSA
The Fibromuscular Dysplasia Society of America is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community. Learn more about our organization.
This organization has earned the GuideStar Exchange Seal, demonstrating its commitment to transparency. February, 2013
_______________________________________________________________________
Save the date, May 18 2013 for the 6TH FMDSA Annual Meeting Cleveland, Ohio May 17th and 18th 2013
Check in and a welcome reception will be held the evening of May 17th and the Conference will start early morning on May 18th at the Wyndham Cleveland Playhouse Square Hotel in Cleveland, OH . Experts will discuss the latest Fibromuscular Dysplasia patient registry finding's and other related topics. After all speakers we will have a panel discussion where everyone will have the opportunity to ask questions. On line registration is now open, click here to register.
Confirmed speakers:
_______________________________________________________________________
March, 2013 NEW DATA FROM THE FMD REGISTRY RELEASED AT THE ACC:
While FMD more commonly affects women, there are important sex–related differences in the clinical manifestations. Men with FMD have higher rates of arterial dissection and aneurysm and prevalence of renal artery involvement. Cerebrovascular signs and symptoms are more common in women. To view the abstract, click here
MORE NEW DATA FROM THE FMDSA FUNDED REGISTRY:
Roughly 1 in 5 FMD patients reported an aneurysm. Male FMD patients were more likely to develop an aneurysm than female FMD patients. FMD patients with aneurysms had earlier onset of hypertensio...n, higher prevalence of subarachnoid hemorrhage, and were more likely to have FMD identified in multiple vascular beds, especially mesenteric and intracranial carotid artery involvement. Further research is needed to determine the cause of arterial aneurysms in FMD and more effectively recognize FMD patients at risk for aneurysm formation. To view the abstract, click here Presenting the posters are Dr Esther Kim, Dr Heather Gornik and Jordan Galvin.
.)
FMDSA Circle of Friends
To help fund the United States Registry for Fibromuscular Dysplasia, we have created the
FMDSA "Circle of Friends". The FMDSA Circle of Friends is a group of committed benefactors with an interest in supporting the patient registry. By making a gift or pledge of $5,000 or more annually, you can help FMDSA ensure that the registry continues. Without the registry, we are just a group of patients. With the registry, we are a voice that has gotten the attention of the medical community.
You can be a part of something great while making a difference in the lives of patients, not only today, but for generations to come. For many of our members, their daily activities of living are affected and they do not have the ability or means to give. It takes special individuals like you to help make a difference.
FMDSA has made substantial progress in raising awareness of this disease and educating medical professionals over the last decade as evidenced by the increasing number of patients that are newly diagnosed. We need your help to continue to be a voice! To learn more about the FMDSA Circle of Friends, please contact Pam Mace at pam.mace@fmdsa.org
_________________________________________________________________
The Memsaic FMD Wall
Post your picture or a message for other FMD Patients to see. The bricks are only $15 each and you can buy more than one, only 210 bricks will be sold. Help us to build a Beautiful FMD Wall, while supporting our programs. It's fast and easy.
To view our wall, please click here
________________________________________________________________
Latest News
Cath Lab Digest - Fibromuscular Dysplasia: The Registry and Results, interview with FMDSA Executive Director, Pam Mace can be found here.
Results published in Circulation May 2102, from the United States FMD Patient Registry on the first 447 patients who participated, click here This is the most up to date information to be published on fibromuscular dysplasia.
For a copy of Circulation's Cardiology Patient Page on FMD published May, 2012 click here
Join us on the FMDSA Facebook page, click here also join our Inspire Support Community
_________________________________________________________________
For the most recent data
Coming from the FMDSA funded FMD Patient Registry presented at the 2012 ACC meeting in Chicago, please follow the link to the JACC web site by clicking here
_______________________________________________________________________
Dr Jeffrey Olin spoke at the ISET meeting in Miami on January 17th and the media was there paying attention, for highlights of Dr Olin's talk please click here. Thank you to all who donate, the registry and this data would not be possible without you.
___________________________________________________
FMDSA's Amazon Wish List:
The Amazon Wish List allows organizations such as ours to defray the cost of many items we would otherwise need to purchase, and allows benefactors the opportunity to make a donation to FMDSA in the form of an item that we need in our office or for a conference. Click here to search through our "wish list" and find an item that you would like to donate to FMDSA, it is that simple, add to your shopping cart, pay and Amazon ships it to FMDSA. Thank you in advance for helping support FMDSA via our Amazon.com wish list. Please note that it has come to our attention that Amazon is not sending a gift notice with your orders so for now unless you contact us directly we have no way of knowing who sent the items. We are working with Amazon to resolve this issue.
We comply with the