Welcome to FMDSA 
The Fibromuscular Dysplasia Society of America is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community. Learn more about our organization.
Coronavirus
FMDSA is recommending that everyone follow the guidelines set by the Center for Disease Control (CDC) www.cdc.gov. If you have specific questions regarding your persoanl medical history, please contact your health care provider.
A message from Dr. Heather Gornik and Dr. Jeffrey Olin regarding the coronavirus and questions that we have received. Please check with your physician to discuss your specific medical history and how the coronavirus might affect you.
They have also addressed patients receiving the COVID-19 vaccines.
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We are honored to share our Guide Star Platinum Seal of Transparency.
Please check back soon for more information about The 2021 (Virtual) Annual Meeting on Fibromuscular Dysplasia.
If you have specific questions please contact Pam Mace at pam.mace@fmdsa.org
Each year we bring together the leading specialists to come and speak about FMD. This is one of the most beneficial meetings for anyone interested in learning more about FMD. During the meeting you will hear about recent developments in FMD management, as well as learn from hearing specialists who will discuss recent understandings of the disease.
Not only will you benefit from specialist presentations, but you will also be able to speak with them directly in open panel discussions. These open panel discussions give you the opportunity to ask specialists with FMD expertise anything that may not have been answered during the presentations.
You will also have the opportunity to meet others diagnosed with FMD. If you, or a loved one has FMD, it can be difficult for others to understand things you may be dealing with in relation to the disease. Being able to connect with others who can relate, can help with your ability to cope with FMD. It's comforting to know you're not alone in dealing with this disease, and having others provide you with their suggestions for dealing with certain issues, can be invaluablel (*always consult with your physician prior to applying any of the recommendations).
Tentative topics include:
- What is Fibromuscular Dysplasia?
- Treatment of Cervical Artery Dissection and Intracranial Aneurysms
- Identifying the Patient Likely to Benefit from Renal Artery Angioplasty
- Pulsatile Tinnitus and Current Treatment Options
- Spontaneous Coronary Artery Dissection: treatment, exercise and the iSCAD Registry
- FMD and SCAD research update
- United States FMD Registry: what has it taught us?
Speakers include:
- Dr Jeffrey Olin - Mt Sinai, New York
- Dr Heather Gornik - University Hospital, Cleveland, Ohio
- Dr Santhi Ganesh - University of Michigan
- Dr Shazam Hussain - Cleveland Clinic, Cleveland, Ohio
(We are still finalizing speakers and topics...stay tuned!)
*Event speakers and details are subject to change.
Due to the coronavirus the Martahon is now a virtual event. Please visit the Marathon Website for more information.
FMDSA is an Official Charity of the Cleveland Marathon. Please consider running as part of our team in 2020.
Please be sure to join our team:RUN4FMDSA.
We are putting together teams of runners and walkers to participate in the marathon, half marathon, 10K, 5K and kids run. FMDSA is also looking for 25 volunteers to work at a water station for the 2019 marathon. All 25 people will stay together, and we can be as creative as we would like with our water station. For more information please contact volunteer Karen Prcela @ karen.prcela@fmdsa.org
For updates, information and to register for the 2020 Cleveland Marathon, click here.
We would like to encourage our runners to support or create a fundraising page; it's fast, easy and secure. To create your page, click here.
"Revisiting Fibromuscular Dysplasia & Related Vascular Diseases." Feb 2018 Belgium
International collaborative efforts are utilized to unravel the genetics, pathophysiology and natural history of FMD. The symposium was held February 22nd -24th, 2018 at The Belgium Royal Academy of Medicine, Brussels. Hosted by C0-Presidents Prof. Alexandre Persu, Brussels Belgium and Prof. Heather Gornik, United States of America. To view the final program, click here.
Rare Advocacy Partners
FMDSA is a member organization of NORD, the National Organization for Rare Diseases and also a partner of the RARE Project, and Rare Foundation Alliance. These organizations represent rare disease patients from all over the world.
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FMDSA's Amazon Wish List
The Amazon Wish List allows organizations such as ours to defray the cost of many items we would otherwise need to purchase and allows benefactors the opportunity to make a donation to FMDSA in the form of an item that we need in our office or for a conference. Click here to register for amazon smile and to search through our "wish list" and find an item that you would like to donate to FMDSA. It is that simple; just add to your shopping cart, pay, and Amazon ship your donated item to FMDSA. Thank you in advance for helping support FMDSA via our Amazon.com wish list. Please note that it has come to our attention that Amazon is not sending a gift notice with your orders so for now unless you contact us directly we have no way of knowing who sent the items. We are working with Amazon to resolve this issue. Thank you for your donations!
