Fundraising - Why is it important?

Rating: 5    

 07/13/2017 as posted on Great Nonprofits

"This great organization has truly brought hope to my life! I was diagnosed when there was no organization around representing us affected by this disease. I was told no one would ever fund research in my life time because my disease was to rare. Yet in the ten years has been around the engagement of the medical community is astounding! There are FMD Registry sites and centers throughout the country! There is a FMD patient registry Funded by FMDSA! I can now go into a new doctor's office and most of the time they have heard of FMD. Prior to FMDSA the doctors would always confuse my disease with Fibromyalgia. Just google Fibromuscular Dysplasia and you will get thousands of articles! When I was diagnosed there were three! This organization has given me such hope for not just myself, but for my children and their children! A great big thank you to FMDSA, you have taken away the fear of this disease and offered up hope in its place! The photo is of Executive Director Pam Mace, Dr. Jeffrey Olin and Dr. Heather Gornik. These three among countless others have volunteered hours of their life so that we can find answers. Thank you!"


The FMDSA needs heroes! You can help make a big difference in furthering research, spreading awareness, educating health care professionals, and offering patient support.

In order to continue with our efforts, we need to raise funds. We've been fortunate to have had some of our members hold fundraisers in the past, and we hope all FMDSA members to consider holding their own fundraiser to help us continue to learn more about FMD, help patients and continue to spread awareness. Fundraisers can be as small as selling baked goods or a gathering of family & close friends, or something on a grander scale, such as a dinner or dance. It all helps!
If you decide to hold an event, the FMDSA is willing and able to help you plan and organize it.

To help inspire ideas and to offer up some guidelines, we've put together an information sheet to help get you started: Fundraise for FMDSA 


Go Fund Me Fundraising made easy. Go Fund Me makes creating your own fundraising page easy and it’s linked to FMDSA. To view how it works and read about other successful fundraisers and ideas please visit the Go Fund Me website.

If you have any questions please contact Lora Santanastaso at


Amazon Smile Are you shopping on line this holiday season? Do you frequently use Amazon? If so, did you know that you can support FMDSA by registering and using Amazon Smile when you shop. Just follow this link to get started  and make sure to choose us as your selected organization share with your family and friends and ask them if they might support us as well! Thank you!


Use GoodSearch to Fundraise for FMDSA

FMDSA is now a registered charity with GoodSearch, a search engine which allows you to raise a penny for each search through their Yahoo! powered search engine.  By creating a Dailygood profile on the GoodSearch webpage here and selecting the Fibromuscular Dysplasia Society of America as your charity of choice, you can begin raising money for the FMDSA every time you search the internet.  You can also use your Facebook, Google+, or Yahoo! account to sign up for a Dailygood profile.  With this profile, you can also use GoodShop, which partners with popular retailers to donate a portion of each purchase to charity.  Both of these options are easy and rewarding ways to raise money for the FMDSA.   


Shop online with

Shop using and up to 26% of your purchase at over 800 great stores is automatically donated to Fibromuscular Dysplasia Society of America.

Join iGive for free, and a portion of everything you purchase online will be donated to FMDSA at no additional charge to you! Using means a donation of at least $10 for FMDSA- $5 for using iGive & $5+ for your 1st purchase. The donations keep growing as you keep shopping.

It’s free, it’s easy, and every purchase you make generates a donation to FMDSA. Shopping through is safe and secure. Your privacy is always respected. They will never sell any of your personal information. After you make a purchase, the FMDSA will receive a check from for 100% of the donation percentage listed adjacent to each merchant on the site. You can use the Web site to track the funds you have raised, or to see how much FMDSA has received overall. It's all part of what makes the best way yet to shop on the Web, not to mention the best way to show you care. Start your shopping experience TODAY!


Fundraise through FirstGiving

FirstGiving makes it easy and simple for you to raise funds quickly and easily to help support vital FMDSA programs like our International Patient Registry, Grassroots Awareness Program (GAP), and Physician and Patient Education Programs. Firstgiving provides the template, and web address. All you need to do is fill in the requested information! You can then e-mail your personalized web page to family and friends to encourage donations by credit/debit card in an easy, secure transaction.