Through good times or bad , we the members of the FMDSA are here for you. The organization provides you with valuable resources and lends support in dealing with the disease, Fibromuscular Dysplasia. We also fund research, provide education for medical professionals, advocate to raise awareness of FMD, and we fight for recognition and respect for you in the uphill battle against a rare disease. But we can’t do this without YOU! We rely on our members to provide us with the monies necessary to support these programs and our mission. Regardless of the size of your contribution every penny counts, and 100% of your donation is tax deductible.
To become a member of FMDSA or to make a general donation simply follow this link and choose your membership level. Membership is for a one-year period and must be renewed annually.
FMDSA membership offers:
- Up-to-date information and news through the FMDSA E-mail Network
- Personalized connections with other affected individuals and families
- Discounted Annual Conference registration
- The opportunity for you to contribute and make a difference
Contact your State Representatives to get May designated as Fibromuscular Dysplasia Awareness Month.
Here is a sample letter that you can copy and use to send to your representative, click here to get the pdf of the Resolution that should be submitted with your letter. Please contact DeeAnne if you have any questions on this process firstname.lastname@example.org
City, State Postal Code
City, State Postal Code:
Dear (name) I am writing to request your assistance in designating May as Fibromuscular Dysplasia Awareness Month
Fibromuscular dysplasia (FMD) is a disease that causes abnormal cell growth of the arterial wall. FMD can lead to areas of narrowing (stenosis), beading, aneurysms, and dissections (tears) of the arterial wall. Until recently, there has been very little progress made in understanding the disease since it was first diagnosed in 1938. There is no known cause or cure for the disease and there are no set protocols to treat the disease. Many researchers now believe FMD is an under-diagnosed disease. Some of the data suggest that 4-5% of the population may be affected by the disease.
Patients and their families must bear a large share of the burden for things such as educating others, including their own physicians, and raising funds for awareness and research. Patients often experience problems such as a sense of isolation, difficulty in obtaining accurate and timely diagnosis, and optimal treatment options.
I strongly believe the Resolution of Fibromuscular Dysplasia Month will increase awareness, improve the delay in diagnosis, lead to better treatment and improve the lives of patients and families affected by the disease.
I thank-you in advance for your time and consideration.
The Fibromuscular Dysplasia Society of America (FMDSA) is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). Its seeks to accomplish its mission by promoting awareness of FMD, funding research activities, providing patient support and educating patients and the healthcare community.
Corporate Memberships are available to institutions/organizations that support the FMDSA Mission and will partner with FMDSA to support its programs. As a non-profit organization, FMDSA relies upon donations to keep us at the forefront of research, education, networking, and patient support. Corporate sponsorship can provide significant funding to help keep us strong.
FMDSA will enter into only those corporate relationships that are respectful of FMDSA’s high standards, and that provide funding that is unbiased, ethical and consistent with our Mission and Vision. Opportunities for custom program collaborations exist and innovative ideas are welcomed.
FMDSA has established minimum requirements for marketing relationships
- All partnership opportunities must align with FMDSA’s Mission and or have a positive reflection on our organization.
- Partners must have a minimum of one year of established business operations and remain in good standing. with applicable registration and business bodies.
- Corporations must hold themselves to the highest ethical and business standards, including, but not limited to, not making false or misleading claims about their products or services.
- Promotional arrangements may not state or imply endorsement of products or services by FMDSA.
-FMDSA does not sell, loan or distribute its mailing list or email addresses to third parties.
-FMDSA does not enter into cause marketing relationships in the following business categories:
FMDSA reserves the right to refuse marketing relationships with any entity for any reason.
All relationships must meet the Better Business Bureau (BBB) Standards and be in compliance with the law.
If your organization meets the minimum requirements and you would like more information, please contact Board Member Kellie Smiddie at email@example.com
Logo: Uses of FMDSA’s name, logo or any of its licensed marks are strictly prohibited until a fully executed agreement with the desired party is in effect. Entities allowed to use FMDSA’s name, logo or any of its licensed marks much agree to discontinue their use upon the termination or expiration of the marketing agreement.
FMDSA Circle of Friends
To help fund the United States Registry for Fibromuscular Dysplasia, we have created the
FMDSA "Circle of Friends". The FMDSA Circle of Friends is a group of committed benefactors with an interest in supporting the patient registry. By making a gift or pledge of $5,000 or more annually, you can help FMDSA ensure that the registry continues. Without the registry, we are just a group of patients. With the registry, we are a voice that has gotten the attention of the medical community.
You can be a part of something great while making a difference in the lives of patients, not only today, but for generations to come. For many of our members, their daily activities of living are affected, and they do not have the ability or means to give. It takes special individuals like you to help make a difference.
FMDSA has made substantial progress in raising awareness of this disease and educating medical professionals over the last decade as evidenced by the increasing number of patients that are newly diagnosed. We need your help to continue to be a voice! To learn more about the FMDSA Circle of Friends, please contact Pam Mace, firstname.lastname@example.org.
FMDSA's Amazon Wish List
The Amazon Wish List allows organizations such as ours to defray the cost of many items we would otherwise need to purchase and allows benefactors the opportunity to make a donation to FMDSA in the form of an item that we need in our office or for a conference. Click here to search through our "wish list" and find an item that you would like to donate to FMDSA. It is that simple; just add to your shopping cart, pay, and Amazon ship your donated item to FMDSA. Thank you in advance for helping support FMDSA via our Amazon.com wish list. Please note that it has come to our attention that Amazon is not sending a gift notice with your orders so for now unless you contact us directly we have no way of knowing who sent the items. We are working with Amazon to resolve this issue. Thank you for your donations!