Pamela Mace


Pam Mace was diagnosed with FMD in 2001 after dissecting both of her carotid and a left vertebral artery in 2000. In 2004, she became a volunteer of FMDSA which was just incorporated in October 2003. Pam accepted the invitation to serve on the Board of Directors of FMDSA in 2005 and was successful in getting FMD listed on the National Organization of Rare Diseases. In 2006, she convienced the National Stroke Association to recognize FMD as a cause of stroke and then a year later the American Stroke Association, these three accomplishments are what lead to our very successful awareness campaign and an increase in patient diagnosis.

Pam was elected President of FMDSA in 2006 and in 2009 accepted the Executive Director position. She continues to work passionately as a patient advocate and at developing and executing the FMD awareness campaign and programs.

Pam is directly responsible for bringing international FMD experts together and for helping to facilitate and support groups around the world. She speaks internationally on the disease and serves on both the Steering and Publications Committees for the Registry. In 2015, she received a Lifetime Achievement Award from the Fibromuscular Dysplasia Society of America.  

Pam has more than 20 years experience as a registered nurse working primarily as an emergency room/trauma nurse. She also has experience working in the Cath Lab, on a Critical Care Transport Team and in the Intensive and Coronary Care Units. Pam’s experience also includes working with children, individuals with developmental disabilities and as Clinical Director of an Emergency Department in Chicago. She continues to give back by volunteering her time at a local medical clinic for the working uninsured.