Upcoming Events

What's New with Fibromuscular Dysplasia - [Video Chat] 

Don't miss this opportunity to chat with an expert in the diagnosis and treatment of FMD, Heather Gornik, MD, and Pamela Mace, RN, Executive Director of the FMDSA. They will also be discussing the FMDSA Annual Meeting and the first ever International Fibromuscular Dysplasia Research Network Symposium held May 15th and 16th in Cleveland, Ohio.


Date: Thursday, June 19, 2014 Time: 12:00 PM (EST). Please register in advance to participate by using this link.


The next get together for the GA FMD Group will be February 4th 2014

Please join us if you can. Plan to arrive as close to 6:30 as possible then we can all order dinner.

Date: Tuesday, February 4th
Time: 6:30 - 8:00ish
Place: Cheeky's Restaurant located at The Collection at Forsyth Shopping Center (GA 400 at 141)
Phone: 770.888.9940
 RSVP: mzwaters@gmail.com by February 1st

 

7th FMDSA Annual Meeting in Cleveland Ohio May 17th, 2014

Registration and a welcome reception will be held the evening of May 16th and the Conference will start early Saturday morning on May 17th at the Wyndham Hotel, Cleveland Playhouse Square, in Cleveland, OH. Speakers will discuss the latest Fibromuscular Dysplasia patient registry finding's and other related topics. At the end of the meeting there will be a panel discussion where everyone will have the opportunity to ask questions.

Confirmed speakers include: Dr Jeffrey Olin, Mount Sinai, NY - "Update from the US FMD Patient Registry"Dr Heather Gornik, Cleveland Clinic, Ohio," International FMD Research Network Symposium Update"Additional speakers and topics to be announced.

To book your hotel room please contact the Wyndham Hotel directly and mention FMDSA to receive the discounted hotel rate of $119.00 216-615-7500

For more information please view the, annual meeting page

What are you doing to raise awareness of FMD on rare Disease Day? Visit Global Genes and NORD to see how you can get involved.