Upcoming Events


Registration for the 2018 Cleveland Marathon NOW OPEN

FMDSA is an official sponsor of the 2018 Cleveland Marathon. You can help raise awareness of FMD by running or volunteering! The marathon will be held on May 20th, 2018.

Registration is open! Please register under Groups and then our Group:RUN4FMDSA. For more information and to register for the 2018 marathon, click here. To receive a 10%discount please use Group Code:FMDSACHARITY10


November 4th, 2017: Lisa's Light, Race for Your Reason


Lisa’s Light. “Lisa was a beautiful woman who lived her life helping others. She volunteered at charity fundraisers and unexpectedly suffered an aneurysm walking out of church surrounded by her family on Christmas Day. Last year we had our first event in her name, Lisa’s Light which raised $8,000 for Fibromuscular Dysplasia Society of America in her memory. This year we keep Lisa’s Light shining on with all of her Hartford family and supporters as a part of Race for Your Reason. Brain Aneurysms are so unpredictable, and we need so much more dedication to research and funding.”

At this unique race, participants are able to choose which of the highlighted charities they would like to race for, split their fee amongst the 5 charities. Participant registration fees and any donation can be applied to their choice!

Please support Lisa’s Light and help her family and friends by sharing this post. If your able to attend the event, please select the Fibromuscular Dysplasia Society as your Reason to Race.

We send our deepest condolences to Lisa’s family and friends.

To register for this event click here. Use Code:FMDSA to receive a discount on registration


February 2018 The 2nd Belgium Fibromuscular Dysplasia Symposium.


More information coming soon.



In Cleveland, Ohio. 


More information coming soon.


Thank you to our 2017 Meeting Sponsors










May 19th & 20th 2018 FMDSA is an Official Charity of the 2018 Cleveland Marathon 



We are putting together teams of runners and walkers to participate in the marathon, half marathon, 10K, 5K and kids run. FMDSA is also looking for 25 volunteers to work at a water station on Sunday, May 20th. All 25 people will stay together, and we can be as creative as we would like with our water station. For more information please contact volunteer Iva Prcela at iva.prcela@fmdsa.org,  For specific information on the race, click here.

For updates, information and to register for the 2018 marathon, click here

Registration opens August 1st. Discounted early registration is available from August 1st until August 11th, then rates will increase! The early registration group code for all races is: EARLYBIRDFMDSA10This code should be entered into the COUPON CODE section of the application form. We would like to encourage our runners to support or create a  fundraising page; it's fast, easy and secure. To create your page, click here

2017 Cleveland Marathon