2012 FMDSA Annual Conference

"May 18-19, 2012"...the FIFTH FMDSA ANNUAL CONFERENCE will be held at the Wyndham Hotel in Downtown Cleveland.  We would like to thank Cardiomems and the Cleveland Clinic Foundation for being the first to sponsor our 2012 meeting at the Platinum Level! We would also like to thank the University of Virginia and Greenville Hospital for sposnoring our meeting. To hear Dr. Gornik discuss last years meeting, click here

Friday May 18th there will be a reception and registration starting at 5:30 pm, and the conference starts early Saturday morning.

Confirmed speakers include: Dr. Santhi Ganesh, University of Michigan - Genetics; Dr. Bruce Gray, Greenville Hospital SC - Intervention and FMD; Dr. Jeffrey Olin, Mt Sinai New York - New Data from the FMD Patient Registry; Dr. Heather Gornik, Cleveland Clinic Foundation - Quality of life, Genetics and Physicial Exam; Dr. Kevin Meyers, Childrens Hospital of Philadelphia - Genetic causes of Renovascular Hypertension in Children; Dr Esther Kim, Cleveland Clinic Foundation - Fibromuscular Dysplasia 101; Dr Mark Stillman, Cleveland Clinic- Headache and treatment options; Dr James Stanley, University of Michigan - Anatomic spectrum of FMD (classifications of FMD) and Operative treatment of chlidhood renal FMD; Dr. Chris Buller, St. Michael's Hospital, University of Toronto - Coronary FMD.

To register for the meeting, please click here
To download and mail in registration click here

To make hotel reservations please contact the hotel directly at 216-615-7500, mention Fibromuscular Dysplasia Society to receive the discounted rate of $95.00/nt plus tax. We suggest you book your room early as the hotel sold out for the last meeting. As we have more details, they will be posted on facebook and the FMDSA web site.

 

Overview of the 4TH Annual FMDSA Conference

The 4th Annual FMDSA Conference, held at the Doubletree Hotel in downtown Cleveland May 13th and 14th of 2011 was a huge success with over 60% of those attending being new to FMDSA.  A big thank you to our sponsors and speakers for their support as the conference would not be possible without them. Their contributions made the meeting a success.

On Friday, those present were given the opportunity to tour the Cleveland Clinic’s Art Display, prior to participating in the FMD Biorepository. The art tour was led by Jim Lang an Art Ambassador who was very knowledgeable and provided insights about the art, artists and the meaning behind the pieces (wall hangings, sculptures and digital art). This also gave many the opportunity to see how vast the Cleveland Clinic truly is and how many people come to Cleveland to be seen and treated at the Clinic.

Several topics were presented by our Conference Speakers including Doctors Jeffrey Olin and Heather Gornik, who both presented new data from the FMD Patient Registry.  To view Heather Gornik's conference presentation, please click here.  It was very exciting to hear the data especially for those who were diagnosed so long ago and told there would never be research done on FMD. Once this data is published it will be posted on the FMDSA web site.

Dr. Gornik also played FMD Jeopardy with all participants and the top four winners received prizes provided by the Cleveland Clinic for their knowledge of FMD.   Chris Buller, MD attended all the way from Canada and spoke on Coronary FMD. Dr Buller’s presentation shed new insight into this area and had everyone talking.   Dr Esther Kim of the Cleveland Clinic spoke on the ABC’s of FMD for those newly diagnosed, to give them a basic understanding of the disease.

Angela Dalenberg from the Mayo Cinic gave an update on the FMD Biorepository and later in the day staff from the Cleveland Clinic was present to consent and draw blood from patients and first-degree family members that wanted to participate in the FMD Biorespository sponsored by the Cleveland Clinic and the Mayo Clinic. To view Angela Dalenberg's biorepository presentation, please click here

Carotid FMD and intervention was discussed in depth by Dr. Hussain from the Cleveland Clinic.  Dr. Hussain graciously stepped in to cover for Dr. Gupta, who was not able to attend at the last minute. We then heard from Dr. Leopoldo Pozuelo, Section Head of Consultation Psychiatry at the Cleveland Clinic and Dr. Kevin Meyers from Children’s Hospital of Philadelphia who also joined in the Q&A panel discussion following the presentations.

FMDSA would also like to thank all who made donations during our Annual Meeting, totaling over $9000.00. A special thank you to Cheryl Golden ($5,000.00), Jodi Roth ($2,500.00), Dorine Secrest ($1,000.00) and Nikki Esserman ($500.00).

The event concluded with our Raffle/Reception, which included a DJ spinning records, dancing, food and beverage, while some old friends had a chance to catch up with each other, many new friendships were formed. Everyone agreed that this was a very educational experience, and for many a very emotional experience to meet so many other patients with FMD.  We are all looking forward to the 2012 Fifth Annual Meeting.