FMDSA needs your financial support to enable us to continue to fund the patient registry, attend conferences to educate the medical community with Fibromuscular Dysplasia, to support our members and to help spread awareness.
Please consider supporting us. Even small donations add up to help us fulfill our goals. We want to be able to continue the great work we've started.
You may make a tax deductible donation. The Fibromuscular Dysplasia Society of America, Inc. was founded on March 11, 2003 and received tax exempt status on October 7, 2003. FMDSA is a Delaware nonprofit corporation which is classified by the IRS as exempt under IRC Section 501(c)(3) and as a "public charity" under IRC Section 509. Donations from individuals and corporations are tax deductible to the extent permitted by law. Tax ID: 01-0771966 Here is a list of other ways you can help.
November, 2014 Annual Appeal Letter
We first wish to thank those of you that have supported our organization through your donations of personal time, money, and expertise. Without your help we could not have made the great strides we have over the course of the last decade.
Our growth throughout the past 11 years has given our organization a worldwide presence and helped us to create awareness on a scale we never imagined. We have educated patients and healthcare providers internationally, resulting in increased awareness, collaboration, research, faster diagnosis and treatment, and FMD Clinics throughout the United States.
By uniting physicians with an interest in FMD throughout the world we assisted in the development of the International FMD Research Network. This past May, was the first International FMD Research Network Symposium and we were there. The event was co-chaired by medical advisory board members, Heather Gornik and Jeffrey Olin. The Network teams have identified and are attempting to address the many issues specific to FMD.
One of our proudest accomplishments to date has been the FMDSA funded, FMD Patient Registry. The database will one day give us a full understanding of the disease and hopefully lead to the best treatment options and possibly a cure. There have been more than 20 posters, abstracts and manuscripts already published from the data in medical journals and presented at medical conferences. To date over 1,100 patients have participated and we have 14 active registry centers enrolling patients. Additional centers throughout the US, Canada and Europe wanting to participate in the registry have been placed on a wait list, with the goal of adding centers in 2015.
From our very first Annual Meeting in 2008, we have supported many on site research projects by coordinating and facilitating blood draws, saliva collection and even a quality of life study for patients living with FMD. These projects will help us to better understand the disease and its impact. This year, FMDSA participated in Rare Disease Day in Washington, DC representing patients affected by FMD. We were also successful, in getting the first ever nationally recognized Fibromuscular Awareness Day designated as March 11th, in the state of Michigan.
These programs and others, such as attendance at national and international meetings, educational programs, and our awareness campaigns are self-funded. The registry alone costs us in excess of $40,000 annually. In these tough economic times grants, donations, and free money are not easy to attain.
We have several corporate and private donors that provide us with generous donations that pay for a portion of these expenses. Some members have made the effort to hold personal fundraisers to support the cause. Sadly these efforts are not enough to sustain our organization and continue as we have in the past. Restructuring of the organization, and cost cutting measures have already been made. We do not wish to compromise the integrity of the FMDSA and we are determined to maintain the patient registry, annual meeting, and other worthy programs and services that we provide.
We hope that we can count on you. We are asking that you support our annual appeal by making a cash donation. Let your friends and family be reminded of the seriousness of your disease and ask them to help in any way they can. Maybe even just a small donation to recognize your involvement with the FMDSA and acknowledge you as an active part of helping others and working towards a common goal. The more people that get involved, the greater our goals and accomplishments.
We are optimistic that the patients, families, friends, healthcare workers, and concerned people will appreciate the urgency of our situation and give us the financial support to succeed. We understand that everyone does not have the ability to personally contribute at this time. However, you should not feel awkward or guilty asking others to contribute to your cause.
Whether you donate now, or later on when you have the ability, your gift is always welcome and even the smallest donation plays a big part in our health as an organization. Get involved, and help by keeping up on the fundraising activities we are currently running such as the Medical Alert Bracelet fundraiser and our Café Press Store, that offers many great items to raise awareness of FMD. Help by sponsoring our runners in the 2015 Cleveland Marathon. What better gift could you ask for on a Birthday or for the Holidays but a small donation towards your health?
The FMDSA Board of Director
WITHOUT AWARENESS, THERE IS NO FUNDING.
WITHOUT FUNDING THERE IS NO RESEARCH.
WITHOUT RESEARCH, THERE IS NO CURE. WITHOUT A CURE, THERE IS NO HOPE.
WE NEED TO WORK TOGETHER TO MAKE SURE THERE IS ALWAYS HOPE
You can either print and complete our donation form and mail your check or money order, payable to the Fibromuscular Dysplasia Society of America(address below), or use our secure online donation form.
It's Personal, Monthly Commintment Program
When you want to get something taken care of you can do one of two things. You can find someone to do it for you OR you can take care of it yourself!! “It’ Personal” is FMDSA’s new campaign encouraging all of us to take matters into our own hands and give our support financially to FMDSA through a Monthly Giving Program.
There is no minimum amount expected and certainly no max amount suggested. It is what works for you “PERSONALLY”. The awareness, knowledge and support we receive through FMDSA empowers us to take charge of our own health and that is worth more than any of us could ever contribute in cash! click here, to download the "It's Personal" brochure. To sign up on line for the monthly program, commit here.
FMDSA Circle of Friends
To help fund the United States Registry for Fibromuscular Dysplasia, we have created the FMDSA "Circle of Friends". The FMDSA Circle of Friends is a group of committed benefactors with an interest in supporting the patient registry. By making a gift or pledge of $5,000 or more annually, you can help FMDSA ensure that the registry continues. Without the registry, we are just a group of patients. With the registry, we are a voice that has gotten the attention of the medical community.
You can be a part of something great while making a difference in the lives of patients, not only today, but for generations to come. For many of our members, their daily activities of living are affected and they do not have the ability or means to give. It takes special individuals like you to help make a difference.
FMDSA has made substantial progress in raising awareness of this disease and educating medical professionals over the last decade as evidenced by the increasing number of patients that are newly diagnosed. We need your help to continue to be a voice! To learn more about the FMDSA Circle of Friends, please contact Jodi Roth at firstname.lastname@example.org
Donation in Memory / on Behalf
A donation to FMDSA in memory or on behalf of a loved one is a special and lasting tribute to those you cherish and respect.
In Memory: A notification will be sent to the bereaved family of the person remembered, as you specify, to acknowledge your memorial gift. Please include the name of the person being remembered and the name, address with zip code of their next of kin. The amount of your gift remains confidential.
On Behalf: Notification will be sent to your honoree to acknowledge your gift. Please include the name of the person being honored, his/her address with zip code, and if appropriate, the reason whether it be birthday, anniversary or just because. The amount of the gift remains confidential.
Send a check or money order made payable to the Fibromuscular Dysplasia Society of America, along with the name of the individual being honored and their address with zip code for an On Behalf Gift or the name of the individual being remembered and the name and address with zip code of the next of kin for an In Memory Gift.
FMDSA's Amazon Wish List
The Amazon Wish List allows organizations such as ours to defray the cost of many items we would otherwise need to purchase, and allows benefactors the opportunity to make a donation to FMDSA in the form of an item that we need in our office or for a conference.
Simply go to http://www.amazon.com/gp/registry/registry.html?ie=UTF8&type=wishlist&id=1TGFVOJWASNCR, and search through our "wish list" and find an item that you would like to donate to FMDSA, add to your shopping cart, pay and Amazon ships it to FMDSA. PLEASE NOTE...We have no way of knowing at FMDSA who "gifted" us through Amazon, so please send an email to email@example.com notifying us of your gift so that you can be properly acknowledged. Thank you in advance for helping support FMDSA via our Amazon.com wish list.
Donate Airline Miles
Our need to travel to medical conferences and to meet with institutions is growing. Your generous donation of airline miles will help us to meet our education and awareness goals in the coming year. The value of the airline miles is also tax deductible.
To make a donation of airline miles, please call the FMDSA office at (216) 834-2410 or toll free at 888-709-7089.
Donate A Car
FMDSA has recently completed the necessary paperwork to allow members to donate their used cars. From each car donated, 70% of the proceeds will be contributed to the FMDSA. It's fast and easy! Simply call the number below and staff will assist with arrangements seven days a week. Call before 2PM local time for "Free Next Day Pick Up".
For more information contact:
Donate A Car 1-800-237-5714
Thank you to FMDSA Member Cecile Pileggi for bringing this program to our attention.
While cash donations are always welcome, gifts can come in many different forms that provide the necessary funding to drive FMD research.
If you've invested in stock or real estate over the past few years, the news is that many of our holdings may have increased in value. The bad news is the capital gains tax that you will owe when you sell these appreciated assets.
But there is a way to completely and legally avoid all the capital gains tax on your investments while earning a current year tax deduction on the asset’s full value: by donating your stock to the Fibromuscular Dysplasia Society of America.
Congress has recently extended some very advantageous rules that apply to contributed investments such as stocks or bonds that have appreciated in value. You receive a full income tax deduction based upon the current market value AND you completely avoid ever having to pay capital gains tax on your donated investment. In addition, your charitable contribution may also help you avoid estate taxes.
The IRS Code was specifically designed to make it advantageous for more Americans to contribute to the charitable causes they wish to support. We hope that you will consider this prudent and responsible method of giving to fund much-needed research into FMD.
There are ways you can make a gift of personal or real property to FMDSA and retain a right to use the property during your lifetime. The transferred property may be art, your residence or commercial real estate. In each case you will receive a charitable tax deduction for the present value of the FMDSA’s interest, which will offset taxes on your income. In addition, you may continue to use the property or receive income from it. At the end of your lifetime, the property may be sold with the proceeds going to support the research and awareness programs of the FMDSA, as you have directed.
You can be a part of the future.
Planning a gift for tomorrow will bring you benefits today. You can create your legacy, take some control over the future and build a bridge to coming generations. The rewards go beyond the personal. You will better the lives of people living with FMD and their families and inspire many people to work toward and invest in a future that holds no fear of FMD.
Making a gift through your will is a meaningful way to make a lasting commitment. You can bequeath a sum of money, an item, or any portion of your estate.
If you have a life insurance plan that is no longer needed, you can designate FMDSA as the beneficiary of the policy.
You can also arrange to donate a percentage of your choosing (as little as 1%) from your qualified retirement savings plan by designating FMDSA as one of your plan’s beneficiary.