Become a Member of FMDSA

Through good times or bad , we the members of the FMDSA are here for you. The organization  provides you with valuable resources and lends support in dealing with the disease, Fibromuscular Dysplasia. We offer support for research, advocacy to raise awareness of FMD, and we fight for recognition and respect for you in the uphill battle against a rare disease. But we can’t help you unless you help us.

We rely on our members to provide us with the monies necessary to run the FMDSA. Regardless of the size of your contribution every penny counts, and 100% of your donation is tax deductible.  Please donate what you can,  If you are not able to make a donation at this time, we do offer a free membership.  If you have questions about membership please contact Kellie Smiddie for more information  kellie.smiddie@fmdsa.org

The FMDSA membership offers:

  • Discounted Annual Conference registration
  • A subscription to our newsletter published four times a year
  • Up-to-date information and news through the FMDSA E-mail Network
  • Personalized connections with other affected individuals and families

**To become a member of FMDSA simply follow this link and choose your membership level. Membership is for a one year period and must be renewed annually.

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Corporate Sponsorship

The Fibromuscular Dysplasia Society of America (“FMDSA) is a public health charity working towards better diagnosis and treatment of Fibromuscular Dysplasia (FMD). Its seeks to accomplish its mission by promoting awareness of FMD, funding research activities, providing patient support and educating patients and the healthcare community.
 
Corporate Memberships are available to institutions/organizations that support the FMDSA Mission and will partner with FMDSA to support its programs. As a non-profit organization, FMDSA relies upon donations to keep us at the forefront of research, education, networking, and patient support. Corporate sponsorship can provide significant funding to help keep us strong.
 
FMDSA will enter into only those corporate relationships that are respectful of FMDSA’s high standards, and that provide funding that is unbiased, ethical and consistent with our Mission and Vision. Opportunities for custom program collaborations exist and innovative ideas are welcomed.
 
Requirements:
FMDSA has established minimum requirements for marketing relationships
- All partnership opportunities must align with FMDSA’s Mission and or have a positive reflection on our organization.
- Partners must have a minimum of one year of established business operations and remain in good standing. with applicable registration and business bodies.
- Corporations must hold themselves to the highest ethical and business standards, including, but not limited to, not making false or misleading claims about their products or services.
- Promotional arrangements may not state or imply endorsement of products or services by FMDSA.
 
Additional Considerations:
-FMDSA does not sell, loan or distribute its mailing list or email addresses to third parties.
-FMDSA does not enter into cause marketing relationships in the following business categories:
- Firearms
-Tobacco
FMDSA reserves the right to refuse marketing relationships with any entity for any reason.
 
Transparency:
All relationships must meet the Better Business Bureau (BBB) Standards and be in compliance with the law.
If your organization meets the minimum requirements and you would like more information please contact Board Member Kellie Smiddie at kellie.smiddie@fmdsa.org
 
Logo: Uses of FMDSA’s name, logo or any of its licensed marks are strictly prohibited until a fully executed agreement with the desired party is in effect. Entities allowed to use FMDSA’s name, logo or any of its licensed marks much agree to discontinue their use upon the termination or expiration of the marketing agreement. 
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 FMDSA Circle of Friends

 To help fund the United States Registry for Fibromuscular Dysplasia, we have created the

FMDSA "Circle of Friends". The FMDSA Circle of Friends is a group of committed benefactors with an interest in supporting the patient registry. By making a gift or pledge of $5,000 or more annually, you can help FMDSA ensure that the registry continues. Without the registry, we are just a group of patients. With the registry, we are a voice that has gotten the attention of the medical community.

You can be a part of something great while making a difference in the lives of patients, not only today, but for generations to come. For many of our members, their daily activities of living are affected and they do not have the ability or means to give. It takes special individuals like you to help make a difference.

FMDSA has made substantial progress in raising awareness of this disease and educating medical professionals over the last decade as evidenced by the increasing number of patients that are newly diagnosed. We need your help to continue to be a voice! To learn more about the FMDSA Circle of Friends, please contact Jodi Roth at jodi.roth@fmdsa.org

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Membership Bracelet Program

A very special "string of beads" for FMD awareness. 

We proudly offer this bracelet as a symbol of FMD awareness. FMDSA makes these bracelets available through Peace Unique Jewelry by e-mail, or to order by phone: 330-995-0023.

A Letter from our Executive Director, Pam Mace 

My name is Pam Mace, and like most of you, I have Fibromuscular Dysplasia (FMD). I was first diagnosed with a left vertebral and bilateral carotid artery dissections after experiencing a TIA (Transient Ischemic Attack or ministroke). I later formed carotid aneurysms that led to several  procedures, and a further diagnosis of renal FMD.

With so little information and difficult experiences to deal with, those of us with FMD have evolved into our own little family and depend on each other for support and an understanding of the disease. In honor of our FMD family, I wanted to create a bracelet that would symbolize the unity among us and raise awareness about FMD. Together with Katie Janoch, jewelry designer, FMDSA has created a bracelet that we feel reflects the diverse challenges we face with FMD and the brilliant glimmer of hope for all of us with this disease.

Beads were chosen in the design of this bracelet to represent the “string of bead” appearance of affected arteries that is classic for FMD. Brilliant blue to signify the vascular system and a tree charm to represents both the branches of your arteries affected and life itself. A charm stamped with FMD makes the bracelet exclusive to FMDSA and will serve to raise awareness about this disease. We proudly offer this item as a symbol of FMD awareness. I hope you join me in purchasing and wearing this very special “string of beads” to unite all of us who support FMD awareness.

Sincerely,
Pam Mace, RN